Parent Coalitions and Information Groups

Family/Parent Groups Serving All Disabilities Attention Deficit Disorder (ADD) Autism Blind/Visualy Impaired Deaf/Hearing Impaired Emotional Problems/Behavior Disorders Learning Disabilities Mental Retardation/Developemental Delay Physical/Health Disabilities Tourette Syndrome Amputee Support Groups For National Information

Family/Parent Groups Serving All Disabilities

Advocates United 2112 W. Jefferson St. #242 Joliet, IL 60435 (708) 301-6111 Contact: Barb Olsen Council for Disability Rights 205 W. Randolph, Ste. 1650 Chicago, IL 60606 (312) 444-9484 Contact: Jo Holzer www.disabilityrights.org Designs for Change 6 N. Michigan Ave. #1600 Chicago, IL 60602 (312) 857-9292 Contact: Miguel Jiminez www.dsc1.org Family Resource Center on Disabilities (formerly Coordinating Council for Handicapped Children) 20 E. Jackson Boulevard #900 Chicago, IL 60604 (312) 939-3513 (V) (312) 939-3519 (TDD) (800) 952-4199 (IL only) Family Voices of Illinois 8331 Kimball Ave. Skokie, IL 60076-2926 (773)274-8683(Voice) (773) 274-8685 (Fax) (888) 950-8683 (Toll Free) FamilyVoicesIllinois@Yahoo.com Friends of Handicapped Children 1001 Glendale St. Bensenville, IL 60106 (630) 595-3208 Contact: Oronzo Peconio Illinois Family Support Network 5739 W. Martindale Lane Peoria, IL 61615 (309) 693-8981 Contact: Charlotte Cronin National Center for Latinos with Disabilities, Inc. 1921 S. Blue Island Chicago, IL 60608 (312) 666-3393 (V) (312) 666-1788(TDD) (312) 666-1787 (Fax) (800) 532-3393(Toll Free) NCLD@NCLD.com Family T.I.E.S. 830 S. Spring Street Springfield, IL 62704 (800) 865-7842 (V/TDD) (217) 544-5809 (V/TDD) www.taalliance.org/ptis/fties Fties@aol.com Family Ties-Support Group 4703 W. Westend Ave. Chicago, IL 60644 (773) 287-4290 (773) 287-6545 (Fax) Contact: Anita L. Johnson-Jackson Family Ties-Support Group 2824 S. Highland Berwyn, IL 60402 (708) 484-4570 (708) 795-5282 (FAX) RickyMB@msm.com Family T.I.E.S.- VOICE in the Lincoln Way Area 7302 W. Lakeside Ct. Frankfort, IL 60423 (815) 469-3612 Contact: Brad & Shari Bradley Coalition of Citizens with Disabilities of Illinois 300 E. Monroe, Ste. 100 Springfield, IL 62701 (800) 433-8848 (217) 522-7016 (V) (217) 522-7024 (Fax) www.inw.net/~ccdiweb Best Practices Rhonda Best 3104 Sunnyside Rockford, IL 61114 (815) 753-0992 (815) 753-0993 (FAX) Bestprac@aol.com Quincy CIL Rhonda Altgilbers 912 Jackson Quincy, IL 62301 (217) 222-4815 (217) 222-6338 (FAX) ratwood@rnet.com Childcare Resource & Referral 207 W. Jefferson, Ste. 301 Bloomington, IL 61701 (309) 828-1892 (309) 828-0526 (FAX) Contact: Pam Zook Family Matters 2502 Veterans Effingham, IL 62401 (217) 347-347-4570 (217) 347-5119 (FAX) Contact: Deb Einhorn Family Network on Disabilities (Morris) Contact: Terri Clemmons at (815) 942-6285 Keshet-Jewish Parents of Children with Special Needs 3210 Dundee Northbrook, IL 60062 (847) 205-0274 Contact: Dave Gendel Special Directions 6413 W. 102nd Place Chicago Ridge, IL 60415 (708) 423-6244 Contact: Jacki Lorenz S.K.I.P.-Sick Children Need People Too 240 Clinton Oak Park, IL 60302 (708) 848-0723 Contact: Mary Kolovitz Suburban Service League for the Disabled P.O. Box 8760 Rolling Meadows, IL 60008 (847) 985-1688 Serves: Northwest Suburbs Illinois - TASH 712 Westfield Drive St. Charles, IL 60174 (630) 584-0970 Contact: Mark Doyle Parrents of At Risk Kids 6009 Blodgett Downers Grove, IL 60516 (630) 964-0487 Contact: Debra Scouten Parent Resource Center of DuPage County (PRCD) 800 W. Roosevelt, Bldg. D #107 Glen Ellyn, IL 60137 (630) 545-5020 Illinois Council on Adoptable Children 6119 Hawthorne Rosemont, IL 60018 (847) 698-3668 Contact: Pat Cooper

Attention Deficit Disorder

ADAPPT (Attention Disorders Association of Parents & Professionals Together) Oak Forest, IL 60452 (708) 361-3387 Contact: Liz Zavidny Chadd (Children & Adults with Attention Deficit Disorder) 8181 Professional Pl. Ste. 201 Landover, MD 20785 (301) 306-7070 www.Chadd.org Illinois State ADD Council (will Refer to local groups) P.O. Box 1145 Orland Park, IL 60462 (708) 361-4878

Autism

Autism Society of Illinois 2200 S. Main St., ste, 317 Lombard, IL 60148 (630) 691-1270 (630) 932-5620 (FAX) www.autism-society.org Autismill@aol.com R.A.F. 590 S. York Rd. - Unit B Elmhurst, IL 60126 (630) 279-2441 Contact: Marilyn Flanagan

Blind/Visually Impaired

Illinois Parents of the Visually Impaired C/O Lighthouse for the Blind 1850 Roosevelt Rd. Chicago, IL 60608 (312) 666-1331 Contact: Mary Zabelski National Family Association for the DeafBlind (NFADB) 314 Warwick Dr. Naperville, IL 60565 (630) 983-8565 Contact: Peg Pedersen

Deaf/Hearing Impaired

Illinois Advocates for the Deaf/Blind 1410 Dorothy Dr. Palatine, IL 60067 (847) 358-9522 Contact: Gary Bilek Chicagoland Deaf Parent to Parent Project (847) 568-5200 (V) (847) 568-5240 (TTY)

Emotional Problems/Behavior Disorders

Alliance for the Mentally Ill (AMI) - Greater Chicago 833 N. Orleans St. Chicago, IL 60610 (312) 642-3338 Contact: Shirley Woyt NAMI - Cook County N. S. Cook County North Suburban P.O. Box 863 Glenview, IL 60025 (847) 724-1460 (847) 724-4425 (FAX) Family Support Group Community Mental Health Council 8704 S. Constance Ave. Chicago, IL 60617 (773) 734-4033 Ext. 111 Contact: Mary Harrison (773) 947-2322 Cordelia Twitty Illinois Federation of Families 800 Roosevelt Rd. Bldg. D-004 Glen Ellyn, IL 60137 (630) 858-1649 Contact: Karen Gora Thresholds Weekly Family Support Group 2700 N. Lakeview Chicago, IL 60614 (773) 281-3800 Contact: Peter Illing Toughlove - Midwest Region 6111 Springside Downers Grove, IL 60516 (800) 926-KIDS Viva Family Center 2516 W. Division Chicago, IL 60622 (773) 252-6277 Contact: Lupe Sanchez

Learning Disabilities

Learning Disabilities of Illinois 10101 S. Roberts Road #205 Palos Hills, IL 60465-1556 (708) 430-7LDA Champaign-Ford ACLD 1169 CR 900 E Champaign, IL 61821-9609 (217) 356-1921 Contact: Pat Brown LDA - Chicago South Area 3400 W. 111th St. #215 Chicago, IL 60655 Contact: Kathy Barouski Kirkwood (708) 424-4370 Kane-Kendall LDA LDA 2920 Harvey Road Oswego, IL 60543 (630) 554-9409 Contact: Penny Richards Lake County ACLD P.O. Box 595 Waukegan, IL 60079 Contact: Phyllis Siegel Lake Forest-Lake Bluff LDA P.O. Box 588 Lake Forest, IL 60045 (847) 234-8171 Contact: Linda Coe or Terry Newhouse LDA - Northbrook Area Chapter 2635 Oak Ave. Northbrook, IL 60062 (847) 480-9518 Contact: Linda Clough LDA - Northwestern Illinois 108 N. Foley Ave. Freeport, IL 61032 (815) 235-3991 Contact: Nancy Ballas Orland Area CHILD P.O. Box 241 Orland Park, IL 60462-0241 (708) 535-2923 Contact: Jackie Petrocelli South Suburban ACLD Box 663 Park Forest, IL 60466 (708) 747-2632 Contact: Alice Vaught LDA - Southwest Suburban Chapter 805 Plainfield Road #217 Darien, IL 60561 (630) 654-8877 Contact: Dr. Robert Marciante LDA - United Chapter P.O. Box 7281 Elgin, IL 60121-7281 (847) 697-3287 (847) 360-5467 Contact: Sandy Zamudio West Central ACLD P.O. Box 340 Jacksonville, IL 62651 (217) 245-7275 (W) (217) 245-5782 (H) LDA - Northwestern Illinois 108 N. Foley Ave. Freely, Il 61032 (815) 235-3991 Contact: Nancy Dallas Illinois Dyslexia Association 715 roosevelt Rd. Glen Ellyn, IL 60137 (630) 469-6911 Contact: Maria Liebold (Also Serveing Families of Children with Learning Disabilities)

Mental Retardation/Developmental Delay

Association for Retarded Citizens of Illinois (ARC) 1820 Ridge Road Ste. 300 Homewood, IL 60430 (708) 206-1930 Contact: Anthony Paulawski Central Illinois Down Syndrome Organization(CIDSO) P.O. Box 595 Normal, IL 61761 (309) 452-3264 Contact: Deb Presley Chicago Association for Retarded Citizens 8 S. Michigan Avenue 1700 Chicago, IL 60603 (312) 346-6230 McHenry County Down Syndrome Support Group P.O. Box 1441 Crystal Lake, IL 60039-1441 (847) 658-9314 Contact: Rhonda Umstattd National Association for Down Syndrome P.O. Box 4542 Oak Brook, IL 60522 (630) 325-9112 South Chicago Parents & Friends of Retarded Children 10241 S. Commercial Ave. Chicago, IL 60617 (773) 734-2222 Contact: Anna Ryland Support and Outreach Services 3354 N. Paulina Ste. 205 Chicago, IL 60657 (773) 871-0016 Contact: Janet Joy

Physical/Health Disabilities

Brain Injury Association of IL 1127 Mannheim #213 Westchester, IL 60514 (800) 699-6443 (708) 344-4646 (708) 344-4680 (Fax) Contact: Cheryl Corneliussen Makeing Headway, Schwab Rehab Center 1401 S. California Ave. Chicago, IL 60608 (773) 522-5878 (773) 522-5885 Contact: Pediatric Coordinator Epilepsy Foundation 20 E. Jackson Boulevard Ste. 1300 Chicago, IL 60604 (312) 939-8622 Hand - N - Hand Hope Children's Hospital 3944 W. 60th St. Chicago, IL 60629 (773) 284-7334 Contact: Laura Teran Illinois Spina Bifida Association 3080 Ogden Ave. #103 Lisle, IL 60532 (630) 637-1050 Myasthenia Gravis Foundation, IL 2411 New St. Blue Island, IL 60406 (708) 385-3888 (708) 385-0447(Fax) (800) 888-6208 Contact: Helen DeWitt National Spinal Cord Injury Association - Illinois 1032 S. La Grange Road La Grange, IL 60525 (708) 352-6223 Contact: Mercedes Rauen Parent Association for CP Children (Cerebral Palsy) 16312 S. 66th Ct. Tinley Park IL 60477 (708) 532-1916 Contact: Mary Pisano Parents of Asthmatic Children Good Shepherd Hospital 450 W. Highway 22 Barrington, IL 60010 (708) 381-0123 Ext. 5024 Contact: Carol Wildey Suburban Service League for the Disabled (Cerebral Palsy) 508 Lois Court Mt. Prospect, IL 60056 (847) 593-7979 Contact: Judy Hardman United Cerebral Palsy 160 N. Wacker Dr. Chicago, IL 60606 (312) 368-0308 (312) 368-0179 (Fax) www.ucpa.org

Tourette Syndrome

Tourette Syndrome Association Inc. of IL 5102 Oakton St. Ste. 115 Skokie, IL 60077 847-675-2121 847-675-2147 (Fax) Contact: President/Diredtor Central Illinois (Peoria Area) Nello P. Picchietti (Robin) 1329 N. Allin St. Bloomington, IL 61701-2429 (309) 828-0003 Adult Resource Person Vickie Kinder 935 Leahy Circle E. Des Plaines, IL 60016-5917 (847) 824-8583 Naperville Area Jocelyn Smith (Mark) 1076 Fox Valley Dr. Aurora, IL 60504-5832 (847) 585-8229 Jostielnn@AOL.COM North Shore Area Leon & Linda Gottlieb 561 Sunset Ln. Glencoe, IL 60022 (847) 835-3101 Tourette Syndrome Parent Support Group Silver Cross Hospital 1200 Maple Rd Joliet, IL 60432 (815) 740-1100, Ext. 7629 Contacts: Jackie Mansholt and Janet Minuth Quad Cities Melodie Dow (Walter) 1813 41st St. Rock Island, IL 61201-3849 (309) 786-8591 dow@revealed.net Beth Shoub (Mark) 945 Concord Ln. Hoffman Estates, IL 60195-1809 (847) 934-2414 Bethill@hotmail.com Donna Zimmerman (Robert) 1540 Rutland Ct. Schaumburg, IL 60173 (847) 995-0926 DonnaMZ@AOL.COM Orland Park Vivian & Greg Syndrowski (708) 460-5678

Amputee Support Groups

Amputees' Service Association 4801 W. Montrose Ave. Chicago IL 60641 (773) 262-6027 (773) 583-3959 (Fax) Contact: Bette Hagglund Child Play & Parents Support Group Rehab Institute of Chicago 345 E. Superior St., 10th fl. chicago, IL 60611 (312) 908-5478 (312) 908-9337 (Fax) Contact: Jamee Heelan, Otr Families & Amputees in Motion Shriners Hospital for Children, Chicago 221 N. Oak Park Ave. Chicago, IL 60707 (888) 614-3245 Contact: Ann Mache, Peer Visitation Coordinator Illinois/Iowa Amputee Support Group 1003 S. Bluff St. Albany, IL 61230-9767 (309) 887-5114 Unlimbited Potential Amputee Suport Group The Rehab Institute of Chicago 345 E. Superior, Rm 1148 Chicago, IL 60622-3015 (312) 908-9752 (312) 908-2512 (Fax) Contact: Judy Hill

For information on parent training and information centers nationwide, contact: Technical Alliance for Parent Center c/o PACER Center 4826 Chicago Ave, South Minneapolis, MN 55417-1098 (612) 827-2966 (Voice) (612) 827-7770 (TTY) (612) 827-3065 (FAX)

For information on parent coalitions and parent/family groups nationwide contact: National Information Center for Children and Youth with Disabilities (NICHCY) Box 1492 Washington, DC 20013 800-695-0285

NOTICE The Family Resource Center on Disabilities (FRCD) has made every effort to provide the most current Parent Support Group List. Your assistance in maintaining this directory would be greatly appreciated. Please review your listing in this directory. If there is an error or as time passes and changes occur, please notify FRCD. Also, if you know of any other support groups for families of persons with disabilities please let us know. Your assistance in this effort is greatly appreciated.

Family Resource Center on Disabilities (formerly Coordinating Council for Handicapped Children) 20 East Jackson Blvd., Room 900 * Chicago, Illinois 60064 312/939-3513 (v) 800/952-4199 (Illinois only, Outside Chicago Area) 312/939-3519 (TDD)

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